New Lungs for Jesse

Jesse's journey for bilateral (double) lung transplant for cystic fibrosis

  • In Memory
  • Celebration and Guest Book
  • Register as Organ Donor
  • Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar

June Week 4 Update โ€“ Another Holiday Passed

  • Listed
  • 1 comment

by Jesse Jun 29, 2017

3 min read

Here we are at Day 104/105. Wow. Just wow! We really thought I’d be pretty much healed up by now.

[long pause]

Straight up, I’m tired of waiting and ready to get on with life.

A quick rundown of every day

There has never been a wait of any of my many waiting periods in my 38 years like this wait. No papers to file, no ears to bend, nor efforts to make. I can’t call, email, or pester this into the squeaky wheel getting the oil. I don’t like it.

When it’s quiet or I’m at my desk and finish a task, that’s when the eyes water and throat stiffens.

Then the flash of anger. Sometimes it’s a what I’m working on. Sometimes it’s the closest person to me who has irked me in the slightest. Sometimes it’s at God for not getting this show on the road. Nothing could be easier, so why must I โ€” and my entire family โ€” wait this long?

[short pause]

As soon as the fire reaches white hot, a tiny reading voice in my head reads to me, “Where were you when I created the universe by speaking?” That’s usually enough for me, but sometimes I’m a real hard-head and need to wait for the voice to continue, “You tiny, tiny person. Who do you think you are? I’ve got a gift for you and you’re acting entitled. All you have to do is wait.”

Who am I to even consider being impatient? I’m reminded once again that this isn’t about me.

Statistics

Of course, there are always statistics to look at, which clearly have no actual bearing on anything for each individual situation. Every day, the odds of it being the day is the same. However, as more days in a row are strung together without a result, the odds increase. We verified this with my mathematician brother-in-law on Saturday. It’s been a very long time since the Yellowstone super-volcano erupted, so as time passes and the tremors increase, the odds rise each year even though the odds of it being any given year are very, very low.

It’s another holiday coming up. We’ve passed a few lame US Mail holidays plus Memorial Day, Mother’s Day, and Father’s Day with one call but no information that it was from a holiday-related reason. Now we have one of the biggest donor days of the year coming up in a few days with it being a very long holiday weekend until the actual day with the possibility that any accidents would cause delayed termination of life support well into the week.

With this set of circumstances, my wife and I are on pins and needles in anticipation of the call coming at the worst timing this time to the point of keeping my devices obsessively charged up and not hungry lest I go NPO for the next 2-3 days at any point.

Now that I’ve been reminded of my place once again, I patiently do my stuff while I patiently wait.

 

Reader Interactions

1 Responses to June Week 4 Update โ€“ Another Holiday Passed

  1. Tait says

    July 2, 2017 at 9:59 pm

    I’m sure the waiting is hard. There are a bunch of folks in your corner praying. Hang in there.

    Reply

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

Primary Sidebar

Follow

Funeral and Family Expenses Fund

3 min read

Thank you to all our donors, we have met our fundraising goal.

Recent Posts

  • Missed the Live Stream? It’s now online.
  • Celebrating Jesse’s Life
  • Jesse Petersen Has Passed Away.
  • June Week 4 Update โ€“ Another Holiday Passed
  • Hemoptysis: My Bloodiest Day

Categories

  • Cystic Fibrosis
  • Double-Lung Transplant
  • Dry-run
  • Evaluation
  • General
  • Listed
  • Pre-Transplant
  • THE CALL
  • Transplant Recovery
  • In Memory
  • Celebration and Guest Book
  • Register as Organ Donor

Copyright ©2014–2025 - Hueman for Genesis
Powered by WordPress. Theme by Jesse Petersen for GenesisThe.me

return false; }); });